PeMSDD Registry Surpasses 3,500 Participants

The NPMSC Pediatric MS and other Demyelinating Diseases (PeMSDD) Database has surpassed 3,500 participants, which is a meaningful milestone for the Network and for pediatric MS research worldwide.

As one of the most comprehensive long-term datasets focused on pediatric-onset demyelinating disease, the registry helps researchers better understand how these conditions develop over time, how they are treated, and how they impact children and families.

PeMSDD data continue to support new manuscripts, scientific abstracts, and industry partnerships—advancing research and helping inform better care. We’re also excited to share that a public use dataset is now available to qualified researchers, making it easier to access secure, de-identified data and collaborate across institutions.

Research from the registry now spans more than a decade. You can explore publications dating back to 2009 on our Publications page to see how this work is making a difference.

This milestone reflects the ongoing collaboration of participating centers, investigators, and—most importantly—the patients and families who make this work possible.